Update...

I was meaning to post some pics. Time is passing, it doesn't always feel like anyone actually reads this. But it's nice to have a place to sort my thoughts any how. Where to even start. I'm waiting for a few things, all medical. My lab stuff for me, Jack's MRI. Oh, he went in for his 6 month cardiology (more like 9... it was late)he had an ECHO too and did, thankfully really well sitting still for them. Watching Open Season and giggling; for the most part. He did wince and scowl at the tech a few times. When they have to press on some areas and Jack has no padding like Mom to cushion the pressing, i'm sure it hurts some. I asked the tech if they could print a hard copy of Jack's heart since they had once in the past from Jack's request. He wasn't sure how, so he got someone. They didn't have it set up to do so, they felt bad so they copied it all on to a CD. More than I asked for and very nice. I can review his whole ECHO and have, all 50+ pictures. They were meant to be just still shots, but it's the actual whole ECHO. And now that they think they may have found "SOMETHING" I've had even more insomnia. Jack's Cardiologist said it could be a blood clot. It is near the hole they purposely placed in his heart to let the O2 flow through his heart. IF it is a blood clot it could dislodge and go through his heart and up to his brain, causing a stroke. They can give him stronger RX, but would have to go in once a month to have his blood drawn, so as to monitor the levels in his blood. I don't know what else it could possibly be. But instead of speculating, they are going to have an MRI done to get a better look at it. Jacks cardiologist told me he'd asked the specialist if they could get a better look in that area. And had it confirmed. And pressed to me the urgency of it and that I would receive a phone call to set the appointment... This was Friday morning. It's now Tuesday, and they called this morning just to inform me that the specialist has to place his signature on the urgency as to when it will be scheduled and then they'll schedule it. May be within the next few days. They really know how to hurry things along and make you wait! This is rather typical... as long as he's not scheduled three months from now, or that would really stress me out.

What's in a name...

I've been thinking about this for quite some time now. I have a couple of friends currently expecting and having to think about names. When I was first expecting Duncan, I had researched his name online and it happened to stick. Jared really was hoping for a girl. He'd picked out Lindsay (go figure our first daughters name)Jack of course was named after Jared and his father. I loved the name Elizabeth, and it happened to coincide with Jared's sisters middle name. Then came Ruby. As pictured above. That's my grandma. I didn't know what name to pick for a while and when thinking about character and personality I couldn't help but smile when thinking of my Grandma Ruby. My mom loved to take her to the movies because she always was so openly emotional and brought such energy and life to whatever you'd be watching. One time I went along to see Titanic. You could hear the OOoohs and tisks and everything coming from Grandma. Then upon leaving the theater Grandma turned to me and asked who played the villain. There was a huge display and I pointed and said "Billy Zane" She walked right up to the card board cut out and kicked his name.
Then there was the memory of grandma asking me when I was 14 or 15 are you going dancing tonight? (it was a Friday). No, grandma I don't dance. I replied. She then told me of how she always went dancing when she was young.
Even younger, earlier memory. When my opinion of grandma was (SHE's SO OLD!) I was maybe 10. She saw that my friend and I were trying to play jump rope with one long rope tied to the house. Well that wouldn't do. She joined us. Not just turned the rope, but actually got in on the jumping.
Grandma was never harsh, nor negative. She was joyful and loving. All the things that I think of in my grandma I really hoped for in my daughter. Ironically Ruby has been the most calm and joyful baby thus far. Not that I don't love my other children, I do. But she hasn't been medically stressful, nor has she had some of the loud personality traits of my other children. Maybe grandma's name has more to it than just remembering and hoping. Either way, it's a great name and I'm grateful for both people whom I know in which it represents.

Pretty pretty pleeese Por favor...

Lindsay loves to hound me with favors and loves Dora. So her favorite phrase is "Pretty, pretty please por favor!" She nudges me to make cookies, which I did yesterday. She is currently asking for cupcakes... And wouldn't you know it a Family Circle magazine came in the mail today with lovely spring cupcakes right on the cover! She won't give up until those cupcakes are made.

We're getting over colds here as well. Not too much exciting. I'm anxious for spring cleaning. I want it done and over with. I've sort of started. Ah well, I suppose I shouldn't procrastinate.

I would have been posting more, but I always feel like I'm just complaining. We always have something going on or happening. Forever the tragedy. I am grateful for my family and my friends. I wouldn't be as sane as I am without them. So Thank you.

Lisa

To sleep or not to sleep

I write this having been up since 4 AM, it is now 5:30 AM and i'm feeling fine. I had a horrible nightmare while Jared was gone with Jack to the sleep study. Totally unrelated to why i'm up.
I'm even more curious as to what the sleep doctor will tell us and what the study will show... Because Jared said that Jack fell asleep quickly and stayed asleep (not usual for him) and from what Jared saw from the monitors before he himself passed out, Jack's O2 levels were actually higher than they've been, I think he said 89, which is nearly normal.
I also wonder if all the behavioral problems we've roller-coastered on with Jack is related to when he had a cold. It all began back when he cracked his head open and had to go to the ER for some stitches. He got a cold and his O2 levels had dropped to 85. It makes me wish I were more trained, so I could self administer some oxygen if needed and not have to constantly wonder if I should travel into the hospital to get there opinion and hope we don't pick up anything while we're there.
Well, id take a cat nap now if I could, but the girls have shifted in my bed having climbed in really early. And now there's no room. Ah well an early start to the day shouldn't hurt. Plus it is Jared's day off (yay!)

I've been busy with etsy. It's slow going, within one month of having began the business, I've sold three items. I'm working on more projects. Taking care of the kids. I don't know how well I juggle. But feel free to look up my shop to give your options www.darlingstitch.etsy.com
Tonight Jared and Jack will be doing the dreaded sleep study to see if Jacks oxygen levels are dropping when he sleeps. It sure does run in the family. Jared and Duncan have the C-PAP machine to sleep with at night. And now Jared, Duncan, Jack, and Lindsay will have all gone to perform this sleep study. Duncan and Lindsay had there tonsils and adenoids removed to help. I'm wondering if that's what they'll try with Jack. The specialist did say that even if Jack wasn't a heart patient he'd be a candidate for this test because he has an unusually large uvula.
Well, I need to get more accomplished and stop procrastinating... I'm wishing you all good health!

Lisa

Warning: You may not want to read this...

Fair warning. I don't get many people reading my blog, so this is a good place to release my horrible, rotten, no good morning to. There may be some scarring emotionally if you read on.
I was awoken from slumber this morning at 4:30 am Not as common any more, but occasionally normal for nursing babe. Yet as I took care of my baby, all my "precious" little ones one by one entered my room, wide awake and with no intentions of going back to bed. Then there was the incident. One which I just finished cleaning up. It is now 8:12AM as I write this! I need to purge to forget!
To give an inkling of what I've just endured, I will try to not give nitty gritty details. But so there is an understanding... If you have ever had to brush consistently at that piece of fecal matter that somehow made it onto the porcelain bowl and doesn't seem to be in any hurry to come off. Now Imagine a child, precious child, confessing that they didn't just get up at 4:30 AM but have actually been up since 3:00 AM and had indescribable bathroom issues. Oh, and not in ONE bathroom, but TWO bathrooms. If ever you have seen the movie Daddy Day Care, I now REALLY know how he feels and NO it's not funny any more!!! I had intended on cleaning my bathrooms today, but I did not think I'd be cleaning THAT. Someone somewhere must not have believed my thoughts on "I will clean my bathrooms today" or they just thought it would be funny. PfThthhhhhhhhhhhhhhhhh, to them! Now sadly I cringe when anyone goes into the bathroom now. I don't think I can take much more today. Stupid fog.

new pics

 
 
 
 


crafting, making cookies, back to church, new glasses and happy swinging baby... not necessarily in that order, but here are some of the most recent things.

I've been working on my new business Darling Stitch e-mail at darlingstitch@live.com website at www.darlingstitch.com blog site for pics and info at darlingstitch.blogspot.com or purchase items online at www.darlingstitch.etsy.com it takes a lot of time, so not everything is to where I would like.

I let Lindsay and Jack paint with good acrylic paints on pressed board, I will have to post those pics too, just thought of it.

Duncan was allowed to pick his own glasses, with some trepidation from his parentals. But Jack purposely lost his pair and broke his back ups because Mom picked them out. We couldn't afford to go through that with Duncan, so that is his "style". They remind me of a modern horned rimmed they've got a good inch thick side. He won't let me cut his hair either, I'll probably win that fight when summer hits.

Ruby has been cute as ever all smiles and loves to play with toys. She is aiming high and trying hard to sit up from a lying down position. We call them mini crunches. She is strong.